These little babies to the left are my clinical trial drug. They are a chemotherapy drug. They have shown the ability of reaching the brain (busting through the blood-brain barrier), attaching to the cancer and enhancing the effects of the radiation therapy.
They are super cute right? Total circus peanuts! Today I talked to each one of them to tell them what to do and to let them know they were going to awesome at it. They totally listened. 4 little pug pills sent on a mission every day for the next 40 days. 160 rock stars.
So I have to fast 2 hours before the circus peanuts and I have our little moment. And then I fast for 1 hour after. I have to time this ritual so that I will ingest the drug between 6 and 3 hours before receiving the radiation therapy. I have to log the time on a chart for the trial data. I take the drugs every single day through radiation (even though I only have therapy M-F) and then I continue taking it for 21 days after therapy ends.
The whole brain radiation therapy (WBRT) is pretty simple. They made me a mesh mask that clamps down onto the table (with my face inside of course). I'm sure this could be a sketchy situation for claustrophobic people. Fortunately, I am not one of those people. I accept their offer for a warm blanket (because the answer to that is always yes), lay down on my back and lay still. Today was about 20 minutes because they did x-rays prior to the treatment. I spent the initial minutes talking to my brain - which was actually harder than talking to the circus peanuts. I wanted to tell it to just be relaxed and be open... but then I fell asleep. So, clearly I rocked that!
That'll be on repeat for a few weeks now.
In other news we decorated turkey cutout cookies because we had all the boys tonight (and some naked turkeys) and the kids were totally (sugar) high until lights out. I am slightly afraid of the hangover that will be the morning.
You inspire me to be more positive :)
ReplyDeleteI always hated circus peanuts....however THESE circus peanuts I love. Little rock stars....lol. Bret Michaels, CC DeVille, Rikki Rockett and Bobby Dall. There were 4 so I have named them. Ironically you are now rocking out with Poison. The band. Also poison to get rid of those nasty little tumors. So next time u take them sing "Look what the cat dragged in" to your cancer......I'm giggling a bit imagining the whole 80s band rocking thru your brain. I love you and your positive words. Thinking of you always. YOU are my rock star!!!
ReplyDeleteHmm, I thought I did reply. Still working out how this blog thing works. I did originally and still think this is awesome. Love you!
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